Cllr Timmons (Clondalkin Independent) says ‘’ I was very honoured to stand with the families calling on the Minister and the HSE to allow access to Spinraza for those living with SMA , Sam from Rathcoole and Glen from Clondalkin deserve better , while the government , the HSE and the Pharmaceutical companies drag their heels , we have people’s health deteriorating , this is a life changing drug I have had several motions on this agreed by council , This drug has been used since 2016 , about 1 in 11,000 are born with SMA , these families deserve the best treatment available and more importantly the people living with SMA deserve the best available medication ‘’